Last year we had the pleasure of speaking to Maddie and Elle, the founders of the Snowdrop Bereavement team at St Michael’s hospital at the University Hospitals Bristol and Weston NHS Foundation Trust (UHBW). This Baby Loss Awareness Week, we caught up with Maddie to find out how the service has impacted the hospitals neonatal unit.
What does the Snowdrop team do?
The Snowdrop team was initially launched as a team of two – Maddie and Elle – and is dedicated to caring for families who suffer a loss of a baby in the hospital from 16 weeks gestation through to neonatal deaths. The team was created to bridge a gap between the Maternity and Loss team, who provide support pre-16 weeks, and the support offered on the Neonatal Intensive Care Unit for those who lose a baby after two weeks of life.
The Snowdrop team quickly established themselves as the main point of contact for bereaved parents, offering help via phone or email during working hours and providing a place for people to leave messages requesting support 24 hours a day. Face-to-face support is offered before discharge, and the team aims to follow up with a combination of messages, phone calls and home visits.
In order to provide as personalised a service as possible, the team also offer to support families at clinic appointments and follow up reviews, to support with funeral discussions and to help with memory making.
How was the service set up?
Initially the Snowdrop service was going to be maternity focused, but having recognised the needs of the families in the hospital, it was expanded by the neonatal team to include support for those suffering a loss after birth.
As the first dedicated bereavement team in the hospital, Maddie and Elle had no blueprint to work from, and so visited a number of bereavement teams, maternity centres and neonatal units to see how they run their services. When they were ready to launch, they began by splitting their time between Monday and Friday to ensure it was always covered during normal office hours.
How has the Snowdrop team grown?
Since we spoke to Maddie and Elle in 2023, the Snowdrop team has set up fully and is now an established part of the perinatal service at St Michael’s Hospital. Thanks to gaining substantive funding, the team now includes two Band 7s on 0.8 contracts and a Band 6 on a 0.5 contract. As a result, the service has expanded, and now offers support to all families in the hospital who suffer a loss after 16 weeks, as well as to all who experience a termination foetal anomaly and all who are bereaved on the neonatal unit. In addition, any families who are pregnant following a loss can request follow up support up to 16 weeks, regardless of when or where the loss took place.
The success of the team also resulted in a successful bid for the overhaul of multiple bereavement areas within the maternity and neonatal units, including a delivery room and mortuary viewing area. The hospitals Lavender Suite has also been updated, and offers a family a large area including kitchen, bathroom, living room, bedroom and attached delivery suite to provide a quiet and calm space away from the wards.
Thanks to the increase in funding and subsequent expansion, the Snowdrop team has now supported more than 210 families through bereavement, and has received positive feedback from staff and families alike. According to Maddie, they continue to evolve all the time, taking on the recommendations of those who have used their service to ensure everyone’s needs are met as closely as possible. The team is even considering self-referral, with the aim of removing as many obstacles as possible for those who are in need of support.
Advice for those setting up a bereavement service
Maddie and Elle kindly offered some words of wisdom in their previous post, but having grown significantly since their launch, they had a few more tips for those thinking of expanding their bereavement support:
- Be realistic: Begin small, taking into consideration the number of hours you can realistically dedicate outside of clinical work. Break your goals down into smaller, more manageable aims to help you progress at a rate that works for your unit.
- Record statistics: By recording statistics, you can clearly see how far you have come. Not only does this help boost morale, but it also aids with funding bids as it demonstrates demand for your service.
- Manage patient expectations: Make use of secretaries and admin teams where possible to ensure families are heard but also made aware of the hours you are able to work. Interacting with other teams, including psychologists, administrators and leads can also provide a means of offloading and bouncing ideas around, which will remove pressure from small teams as they start out.
A note from Maddie and Elle: “If anyone starting up a similar service wants to reach out to us, please do! We wouldn’t be where we are now without advice and support from the teams we worked with, and we’d delighted to share what we’ve learnt to support others too.”