“Now that there is an increase in LGBTQIA+ families having children there is a need for clear guidance for nursing staff looking after these families to encourage families to feel empowered and well guided while on the unit and beyond”. – Harriet, neonatal nurse
My name is Ilana Levene, I’m a neonatal doctor working in Oxford and I wanted to tell you about a project I’m working on to improve care for LGBTQIA+ families whose babies need extra care after birth.
National surveys suggest that about 4% of people who give birth in the UK are lesbian, gay, bisexual or have other sexual orientations under the LGBTQIA+ umbrella. In addition, about 1% of people who give birth in the UK are transgender. LGBTQIA+ families often have a lot of worries about the care they will receive within the maternity and postnatal system. For example:
“How can I feel safe when worrying about people’s judgements and how that might impact on my care?”
“How can I ensure my healthcare providers use the correct pronouns and parent titles for us, especially in the hospital when we are in a vulnerable space?”
“Will care providers understand the make up of my future family?”
These questions were submitted in the first survey of the project I am running, which is called a Priority Setting Partnership (PSP) for LGBTQIA+ Perinatal Care. The first step of the PSP was to gather unanswered questions about LGBTQIA+ perinatal care directly from LGBTQIA+ people and the healthcare professionals who look after them in the perinatal period. Over 300 people responded to our first survey and sent in over 1000 questions.
We then went over these questions looking for the ones that could be answered by future research. There were many questions like those above that gave insight into LGBTQIA+ people’s worries and information needs, but for the next stage of the project we were looking for questions that research can answer in the future. We came up with 47 unanswered research questions, which summarized and combined lots of the questions that people had sent in. These questions cover topics like fertility, experiences of care, healthcare professional training, infant feeding and mental health. An example question is “What are the similarities and differences for gestational and non-gestational LGBTQIA+ parents bonding with their baby, and how can bonding be maximised?” Gestational and non-gestational parents refers to those carry or don’t carry the baby.
We are now in the second phase of the project where we want LGBTQIA+ people and their healthcare professionals to help us decide which of these 47 questions are most important for research to focus on. If you would like to tell us your priorities for the LGBTQIA+ families we all look after, take the survey here: bit.ly/PSPTopTen
This is what some members of our steering group have to say about the PSP:
“The PSP is a structured space for learning, debate and inclusion which is truly intersectional. This ongoing work and resulting data will hopefully inform future perinatal research and inspire our colleagues to be emboldened in offering personalised care for LGBTQIA+ people, based on evidence” – Nat Boxall, infant feeding specialist midwife in Sherwood Forest Hospitals NHS Foundation Trust
“The LGBTQIA+ Perinatal Care PSP is important to me as back when my wife and I started our journey to create our family, there was a lack of information, guidance and data to support us making informed decisions. Work like this is crucial to understand the needs of such a marginalised community and help inform professionals of what should be known, and researched” – Laura-Rose Thorogood, LGBT Mummies
“For me, the LGBTQIA+ Perinatal Care PSP is important because research needs to answer the questions of those it serves. Our evidence base should address real-life community need. By centering the experiences of those receiving and providing care, the PSP strives to identify depth, breadth, and nuance. Together, these will direct future research towards the most important questions where answers found could most effectively improve perinatal care for a diverse and long-overlooked population.” – Ash Bainbridge, midwife
We would love to get lots of neonatal nurses responding to our survey to share your Top Ten priorities for future LGBTQIA+ perinatal care research. Have a look at the 47 questions and share your voice: bit.ly/PSPTopTen

I’m Lora Alexander, one of the Quality Improvement coaches in a busy Level 3 NICU. QI is all about understanding problems, thinking of solutions, implementing ideas and analysing the results.
My name is Adedoyin Yissau, also known as Dee. I am the Education and Workforce Lead for the London Operational Delivery Network. I came into post as a Network Educator in 2019 and have since developed nursing education region wide, with the current focus on developing a nursing career pathway for London.
Neonatal Network Nurse Educator
My name is Dr. Julia Petty, and I am a nurse lecturer specialising in children’s nursing with a particular interest in neonatal care. My nursing career in paediatric and neonatal clinical nursing practice began after a BSc Hons degree in Psychology at Warwick University, when I moved to Great Ormond Street Hospital, London. Here, I trained in children’s and adult nursing before working there for many years in children’s and neonatal surgical care. I then gained my neonatal nursing qualification at St George’s NHS Trust London and worked at the Whittington NHS Trust NICU before moving back to Great Ormond Street for a senior education role on NICU where I worked until 2001. I then worked as Senior Lecturer at City University, London for 12 years leading the neonatal nursing education portfolio. I studied for a MSc, a PGCE and MA in academic practice during this time, In 2013, I moved to the University of Hertfordshire where my role is Associate Professor (learning and teaching) and Senior lecturer child nursing. I teach on the BSc Hons nursing and master’s degree programmes including leadership of modules, face-to-face/online teaching, assessing and supervision of students at all levels up to doctorate level. I am also research active and have completed a Doctorate in Education. As a nurse, educator and post-doctorate researcher, my interests focus on parents’ premature birth experiences, supporting parents in the transition home from NICU, exploring communication needs of neonates and their carers and studying the educational value of digital storytelling. This combination and variety of roles enriches my working life and brings together my experience as a child / neonatal nurse, educator and researcher. My role and related activities enable me to engage in both education and research while supporting students on their nursing career and education pathway, which is a privilege to be part of.
Hello my name is Claire Richards and I’m the Lead Nurse for the Wales Maternity and Neonatal Strategic Network. This covers nursing leadership but also Neonatal transport. I also have a clinical honorary contract in one Health Board.
Hello, my name is Kim Edwards, and I am a Neonatal Nurse. I am currently the Lead Nurse and Workforce, Education Lead for the Thames Valley and Wessex Neonatal Operational Delivery Network (ODN)
Hello, my name is Jean and I am a registered children’s nurse with 27 years experience. I qualified with a DipHE after struggling academically due to dyslexia. Over my career I have worked mainly in PICU, NICU and children’s cardiac critical care. I am dual qualified in speciality (QIS) for both Neonatal and Paediatrics. The QIS program is a post graduate modular course completed at level 6/7. To be considered QIS you must successfully complete 4 separate modules, each have an academic and practical component. Only on completion of the QIS course can you apply for a band 6 role. In addition to the above qualifications it is expected you would have several years proven experience in speciality at Band 6 and 7 prior to applying for a Matron’s role.
My name is Lisa Baker, I’m a Ward Manager on a Level 2 Special Care Baby Unit in South Wales and I’ve been in this role since 2020.
Hello, my name is Wesell, and I am currently a trainee Advanced Neonatal Nurse Practitioner (ANNP) at Great Western Hospital, which is a Local Neonatal Unit (LNU). Prior to this, I gained substantial experience in a tertiary neonatal unit where I completed my QIS course at master’s level. This course, alongside my role as a senior nurse, provided me with the expertise required to develop my career further in neonatal care.
My name is Hannah Wells, and I am a Neonatal Surgical Clinical Nurse Specialist (CNS).
Hi, I am Amanda and work as the Neonatal Infant Feeding Coordinator for a NICU and a SCBU within one service. While the role is not standardised, many neonatal units now have dedicated posts.
Hello, my name is Daniela Machado, and I am proud to be a Developmental Care Specialist/Lead Nurse and a sister/charge nurse, working across two different trusts. I am originally from Porto, Portugal, and have spent 14 years building my nursing career in the UK. My role involves applying and advancing neuroprotective/developmental care practices for our preterm and neonatal patients/families.
Hello! I am Renjita Raju , a Neonatal Junior Sister working in London. After completing my BSc nursing degree in India, I moved to UK, and completed NMC OSCE to get registered and QIS course to become specialised in neonatal care. I recently qualified as an NLS instructor with the support from NNA scholarship programme. My role involves caring for premature and critically ill newborns, ensuring their safety and health with a highly collaborative multidisciplinary team. I also teach in NLS courses as an instructor following my passion in neonatal resuscitation. I love witnessing infants grow stronger each day and supporting their families through this journey. I’m grateful for the opportunity to provide meaningful compassionate care to the tiniest, most vulnerable patients.