- Kirstin Webster, ANNP and Neonatal Clinical Fellow, NNA member, NNA ANNP group and PhD Support group member
- Jan van der Scheer, PhD, Senior Research Associate, The Healthcare Improvement Studies Institute (THIS Institute), University of Cambridge
The Healthcare Improvement Studies Institute at the University of Cambridge invites all neonatal and maternity professionals to share their views in a short survey to help to improve collection and use of routinely collected data on avoidable brain injury around the time of birth. The survey is part of the Avoiding Brain Injury in Childbirth (ABC) programme.
Take part before February 23: https://ths.im/4iLI7kY
What is brain injury around the time of birth?
Brain injuries around the time of birth – ranging from hypoxic-ischaemic encephalopathy (HIE) through to stroke and central nervous system infection – can have devastating consequences for babies and their families. They also pose significant lifetime costs for health and care services of the NHS. Although improvements have been made, more is needed to meet the national ambition to halve the annual rates of stillbirth, neonatal death, maternal death, and brain injuries around the time of birth by 2025. Especially HIE – a brain injury related to a series of fetal and neonatal insults around the time of birth – may be avoidable under conditions of optimal perinatal care.
What is the Avoiding Brain Injury in Childbirth (ABC) programme?
The Avoiding Brain Injury in Childbirth (ABC) programme aims to support maternity services to improve and personalise care in labour to reduce risks of avoidable harm. Funded by the Department of Health and Social Care, the ABC programme is led by a collaboration of the Royal College of Midwives, the Royal College of Obstetricians and Gynaecologists and The Healthcare Improvement Studies Institute at the University of Cambridge. The ABC programme brings together clinical expertise, lived experiences, and the best possible scientific evidence to co-design national clinical protocols, innovative tools and a safety culture toolkit to address two significant contributors to avoidable brain injury in childbirth:
- the detection and response to suspected fetal deterioration during labour
- the management of impacted fetal head at caesarean birth, where the baby’s head is deeply lodged in the mother’s pelvis and additional manoeuvres by the maternity team are required
Why do we need to improve data on avoidable brain injury around the time of birth?
High quality data is needed to understand how and why injuries like HIE happen, and what could be done to prevent them. Collecting data during clinical practice is important to improving services, but it can be difficult to record clearly and accurately. As part of the ABC programme, a group of clinicians and researchers undertook a review of data dictionaries of maternity and neonatal datasets. They also consulted a multi-professional group how to improve the use of data to reduce the risk of brain injuries around the time of birth. This review and consultation will be published soon in Pediatric Research. It showed that even though data on maternity and neonatal care are routinely collected in the UK, it’s been difficult to integrate information from various datasets. It has also been difficult to consistently record data, to make sure the information that’s important to families is included, and that the data are used in the best way to drive improvements.
Why is it important to take part in this survey on improving data on avoidable brain injury?
Now that we better understand the problems with data on avoidable brain injury around the time of birth, we can start working on solutions to improve collection and use of relevant data. The views of healthcare professionals, families and other specialists are much needed for that. That’s why the ABC Collaboration has just launched a new survey for all neonatal and maternity professionals, ranging from neonatal nurses and ANNPs to neonatologists/paediatricians, allied health professionals, nursery nurses/maternity support workers, obstetricians, and midwives. This survey offers an important opportunity to help shape how data on avoidable brain injury is captured and used, so that we can better understand risk factors for injury and find the best possible strategies to reduce rates of avoidable brain injury around the time of birth.
Further information
Got questions? Please get in touch with: [email protected]. If you’d like to find out more about the ABC programme, join the ABC Network Community on the Thiscovery platform to get the latest programme updates: https://community.thiscovery.org/
Take part in the survey before February 23: https://ths.im/4iLI7kY

I’m Lora Alexander, one of the Quality Improvement coaches in a busy Level 3 NICU. QI is all about understanding problems, thinking of solutions, implementing ideas and analysing the results.
My name is Adedoyin Yissau, also known as Dee. I am the Education and Workforce Lead for the London Operational Delivery Network. I came into post as a Network Educator in 2019 and have since developed nursing education region wide, with the current focus on developing a nursing career pathway for London.
Neonatal Network Nurse Educator
My name is Dr. Julia Petty, and I am a nurse lecturer specialising in children’s nursing with a particular interest in neonatal care. My nursing career in paediatric and neonatal clinical nursing practice began after a BSc Hons degree in Psychology at Warwick University, when I moved to Great Ormond Street Hospital, London. Here, I trained in children’s and adult nursing before working there for many years in children’s and neonatal surgical care. I then gained my neonatal nursing qualification at St George’s NHS Trust London and worked at the Whittington NHS Trust NICU before moving back to Great Ormond Street for a senior education role on NICU where I worked until 2001. I then worked as Senior Lecturer at City University, London for 12 years leading the neonatal nursing education portfolio. I studied for a MSc, a PGCE and MA in academic practice during this time, In 2013, I moved to the University of Hertfordshire where my role is Associate Professor (learning and teaching) and Senior lecturer child nursing. I teach on the BSc Hons nursing and master’s degree programmes including leadership of modules, face-to-face/online teaching, assessing and supervision of students at all levels up to doctorate level. I am also research active and have completed a Doctorate in Education. As a nurse, educator and post-doctorate researcher, my interests focus on parents’ premature birth experiences, supporting parents in the transition home from NICU, exploring communication needs of neonates and their carers and studying the educational value of digital storytelling. This combination and variety of roles enriches my working life and brings together my experience as a child / neonatal nurse, educator and researcher. My role and related activities enable me to engage in both education and research while supporting students on their nursing career and education pathway, which is a privilege to be part of.
Hello my name is Claire Richards and I’m the Lead Nurse for the Wales Maternity and Neonatal Strategic Network. This covers nursing leadership but also Neonatal transport. I also have a clinical honorary contract in one Health Board.
Hello, my name is Kim Edwards, and I am a Neonatal Nurse. I am currently the Lead Nurse and Workforce, Education Lead for the Thames Valley and Wessex Neonatal Operational Delivery Network (ODN)
Hello, my name is Jean and I am a registered children’s nurse with 27 years experience. I qualified with a DipHE after struggling academically due to dyslexia. Over my career I have worked mainly in PICU, NICU and children’s cardiac critical care. I am dual qualified in speciality (QIS) for both Neonatal and Paediatrics. The QIS program is a post graduate modular course completed at level 6/7. To be considered QIS you must successfully complete 4 separate modules, each have an academic and practical component. Only on completion of the QIS course can you apply for a band 6 role. In addition to the above qualifications it is expected you would have several years proven experience in speciality at Band 6 and 7 prior to applying for a Matron’s role.
My name is Lisa Baker, I’m a Ward Manager on a Level 2 Special Care Baby Unit in South Wales and I’ve been in this role since 2020.
Hello, my name is Wesell, and I am currently a trainee Advanced Neonatal Nurse Practitioner (ANNP) at Great Western Hospital, which is a Local Neonatal Unit (LNU). Prior to this, I gained substantial experience in a tertiary neonatal unit where I completed my QIS course at master’s level. This course, alongside my role as a senior nurse, provided me with the expertise required to develop my career further in neonatal care.
My name is Hannah Wells, and I am a Neonatal Surgical Clinical Nurse Specialist (CNS).
Hi, I am Amanda and work as the Neonatal Infant Feeding Coordinator for a NICU and a SCBU within one service. While the role is not standardised, many neonatal units now have dedicated posts.
Hello, my name is Daniela Machado, and I am proud to be a Developmental Care Specialist/Lead Nurse and a sister/charge nurse, working across two different trusts. I am originally from Porto, Portugal, and have spent 14 years building my nursing career in the UK. My role involves applying and advancing neuroprotective/developmental care practices for our preterm and neonatal patients/families.
Hello! I am Renjita Raju , a Neonatal Junior Sister working in London. After completing my BSc nursing degree in India, I moved to UK, and completed NMC OSCE to get registered and QIS course to become specialised in neonatal care. I recently qualified as an NLS instructor with the support from NNA scholarship programme. My role involves caring for premature and critically ill newborns, ensuring their safety and health with a highly collaborative multidisciplinary team. I also teach in NLS courses as an instructor following my passion in neonatal resuscitation. I love witnessing infants grow stronger each day and supporting their families through this journey. I’m grateful for the opportunity to provide meaningful compassionate care to the tiniest, most vulnerable patients.