Research shows that 60% of babies who receive neonatal care are born full term and sick. Yet, this experience is somehow underrepresented in the narrative around neonatal care.
In support of Bliss’s Full-Term Awareness February, NNA CEO, Cheryl Titherly, reflects on her parents’ experience in 1981.
It was my birthday in January, and I came across a child development study my cousin had completed in 1986. I was the focus of the study. Reading it, I realised how little I knew about my own birth story. I knew I had been in an incubator because I had seen a photograph. I assumed I had been born prematurely.
In fact, I was born full term at 39+5 following a 1.5 hour labour. My parents had been expecting a boy (to be named Andrew or Christopher). I can only imagine they were also expecting that I would be born healthy, as my siblings had been before me.
I surprised on both counts.
When I was born, I was taken to the neonatal unit due to under-developed lungs and a valve not doing what it needed to do. As I was neither an Andrew nor a Christopher, I was without a name while I was in the neonatal unit, so the nurses nicknamed me “Buttercup” because I was born jaundiced.
It wasn’t until I read my cousin’s study that I considered my parent’s unexpected birth and post-natal experience, the uncertainty and the worry. They didn’t know why I had been whisked away after my birth, where I was or how I was.
I hadn’t thought about the separation before either. My mum on the postnatal ward, me in the neonatal unit and my dad at home with my siblings.
In 2024 I went back to the unit where I had been cared for. This time I was there to meet with the unit Matron and nurses to better understand the challenges, frustrations, joys and hopes of Neonatal Nurses and NNA members. I was thankful to be welcomed onto the unit 40+ years later and to experience the unit as a calm place where the staff oozed confidence and expertise.
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Bliss continue to campaign for parent accommodation and facilities within neonatal units to avoid unnecessary separation. The NNA welcomed the focus on Family Integrated Care including parental accommodation in the Government’s response to the House of Lords Pre-term Birth Inquiry. We do now need to see these facilities funded and supported nationally.
If you would like to inform the work of the NNA over the coming years by telling us about the frustrations, challenges and hopes you experience at work, please do participate in our member consultation.